As most of you have heard now we were discharged from the hospital Monday early evening. The enzyme measuring bacteria had gone down from 206 to 3.2 . They tell us the level has to be under 2 for it not to be considered an infection but everyone including the doctors want to see the level at 0. With her low number and her willingness ( at the hospital) to take the medicine allowed her to come home. We are all very happy to be home and Ivy especially is happy to have the needle and the wires ( she calls them wires) out of her hand. However, most days I wonder if it wouldn't have just been easier and less stressful to stick things out at the hospital and finish the antibiotics via IV. The Doctor in the hospital said there was no way they could keep her hooked up to the IV for 3 weeks and I agree but still I felt more comfortable with them monitoring her. So now we just keep watching her ear like a hawk, take her temp etc. If this thing comes back it will not wait it will flare up in a mater of hours. Its just a waiting game a very long waiting game. I just keep praying and praying every free min I get that this thing clears up with the antibiotics. Watching them put her out for a CT scan was traumatic enough for me. They didn't tell us until they were giving her the anesthesia that it would be painful. She started screaming and crying all the way until she went out then she bubbled at the mouth. I lost it and had to leave. That just brought to many horrible memories and to see my poor baby like that was more then I could take. I can't even imagine if this had to go farther and they needed to resort to surgery. They had to put her down because the day before they tried first without anything and she did ok until they turned on the machine well then with the lights and the turning of the different compartments she freaked out and we couldn't hold her still. So they resorted to this liquid that was suppose to put her to sleep but not knock her out. She was so stressed and afraid of " The Tunnel ( that is what she called it") she wouldn't go to sleep. They gave her a higher dose nothing. That was the first day of her life she didn't nap. That poor child was up at 6:30 and didn't go to bed until 9pm due to the stress of it all. She was so drugged up. She would just wave at the ceiling and out of the blue say " Hallo" she sounded weird when she talked and she was so out of it. She kept looking at her fingers like they were something she had never seen before. Any way, we are home praying the rest of the infection clears up with the antibiotics and this will be a thing of the past.
We had an appointment at her doctors yesterday and she just didn't understand the severity of Ivy's case. She had not yet received the records. When she saw the dosage of Ivy's medicine she said it was too high and this can't be right. I had to argue with her and she finally called the hospital. After many minutes on the phone she came back shocked. She said she understood and didn't realize that part of the bone had deteriorated. So she was leaving all alone and filled out our prescription. We are to go right away to the doctors if a fever spikes or her ear becomes increasingly red.
Ivy has to take 15 ml of her antibiotics 2 times a day. Each dose is 375 mg of medicine. Its a very thick sandy ,pasty like syrup. From Ivy's face its very disgusting. She took it well in the hospital but since we have been home has put up a fight. Each time she takes it the fight gets less and less due to bribery. We hold up a piece of candy and my old cell phone and say you can have this if you take your medicine. I hold the candy and phone in her face persuading her while Kevin holds the medicine and juice in his hands. She chases every sip with juice. It just makes me wonder what people use to do before modern technology. The phone is the thing she wants more. The candy is second but it helps get the bad taste out of her mouth. Just to give you an Idea of how much this poor girl has to take in such a short period of time here is a pic
This is 4 bottles 100 ml each in 11 days, yes 11 days. Most kids would take 1 bottle in 7-10 days. Poor girl .
Sorry for the long post its been a very emotional process for us. Now for the cuteness!!
Well, near the last few days at the hospital Ivy decided to try something on her own . She is very creative and I have no idea how she came up with the idea. She stood on the feet of the Ivy stand and said " Mommy ride" I looked confused for a few seconds until I realized what she wanted. She loved to be pushed up and down the hallway. Nurses, Doctors, and others would stop, stare and then start laughing. She is too much!!!! I am still working on improving the video. I shrank it so if you view in full screen the quality is awful, but you get the idea.
Here is 2 really precious pics of Kevin and Ivy from Saturday!!
Just a note, Ivy has been off the bottle for a while. We only give it to her to have hot tea in. I don't want her having it in her plastic sippy cups and I haven't found anything else I like to put it in. Any suggestions would be welcome!!!
Here is a pic from today, Ivy was feeling under the weather until after her nap. It could be the antibiotics or her tummy from the antibiotics. I have a feeling she is going to have ups and downs over the course of the rest of her treatment!!!
If I didn't have video issues I would post a video of her dancing earlier in the evening when she was feeling better. The other thing that is frustrating is we had her off the pacifier except for an hour before bed time and when she slept. Then this happened and we let her have it in the hospital. After she is better we have to start all over again. Oh well, its not the end of the world. I just rather hear her talk then plug up her mouth!!!
I hope you all are having a wonderful week. I will try to update you in the next few days if any thing changes, Keep the Prayers coming!!!!!
